6 Responses

  1. ivyjade234
    | Reply

    beautiful piece and I’m sorry about your mom. I work in a care home and actually work in the dementia unit, so I know all that you are dealing with and the struggle it is seeing someone you love being a completly ​different person and have days were​ they don’t know who you are.

    • ShazieC
      | Reply

      We haven’t got to the point that she doesn’t recognise you but I doubt it’s far away. I believe the medicate her so she sleeps a lot. Heartbreaking x

      • ivyjade234
        | Reply

        Yes that happens but then you have to know that perhaps without it she doesn’t sleep at all or she has her times mixed up and is up all through the night that is very common in dementia patients, I know many of the residents I look after won’t stop walking for hours to days and the medication is the only thing that settles them which does cause them to sleep more.

        • ShazieC
          | Reply

          I believe she was doing that, playing her organ in the middle of the night and not plugging her headphones in. Her sexual comments were getting to bad to. That is one of the things FTD dementia is bad for.
          I don’t think she practices her music now. She would hate to think what she’s like now if she realised. In a way I’d rather her to die than go through all this but then again she’s in her own world. It’s very hard to hold a conversation with her now on the telephone. Such a shame.

          • ivyjade234
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            I understand that feeling have you thought about the right to die. I don’t know if it is legal where you live

          • ivyjade234
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            Never mind just looked it up and it says it is not legal

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